Mary’s Musings
Why We Celebrate Rare Disease Day
Once a year, on February 28th, we pause to celebrate Rare Disease Day and our rare girl, Jessa; doing our small part to bring awareness to many rare diseases worldwide!
Health Update: Jessa's Journey with Juvenile Dermatomyositis
An update on Jessa’s health journey with JDM and the results of her recent auto anti-body test results.
2014: The Year of Unplanned Changes (Our Journey to Auto-Immune Diagnosis)
We rang in 2014 knowing that our family was heading for some big changes; including a major career change for husband and our third baby’s arrival. What we didn’t know was that both of our daughters would be diagnosed with rare auto-immune diseases.
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